Have you or a family member or friend had an experience as a patient or research subject that could help other people?

The Patient Rights Program collects reports of good and bad experiences with patient rights-when rights were needed, how rights were asserted, how they were protected (or ignored), and how family members, advocates, medical professionals or institutions helped (or hindered). After verification, these reports will be summarized anonymously (without your name or identifying information) to alert people to examples of successes and failures in protecting patient rights.

You can fill out a brief questionnaire describing your own experience.

PLEASE NOTE:

The purpose of collecting Real Life Experiences with Patient Rights is to identify examples of good and bad practices that can be used to educate the public and the professions about how (and how not) to protect patient rights.

Your completed questionnaire will not be published or posted for public view. It will be verified and combined with other submissions to produce periodic reports that will appear on this site.

To ensure that stories are accurate, questionnaire submissions must include your name and contact information so that the reports can be verified. Reports without this information will be discarded. The Patient Rights Program will keep your name and contact information confidential and will not use that information in any other way. (The Patient Rights Program does not collect, sell or distribute names or mailing lists. The Program does not have any means to identify visitors to the website unless you voluntarily submit your information in the Real Life Experiences with Patient Rights Questionnaire.)